Jhyelle is doing remarkably well. She was so very sick at birth. The truth is that we almost lost our little baby. When she came out, the laid her on my stomach for a brief moment. She looked ginormous to me (turns out she weighed 8 lbs 10 ozs, so she was h-u-g-e!!). She had her eyes open and was squirming around. But, she didn’t cry or make any big noises, just tiny little wimpers.
The very attentive nurse immediately took her over to the warming bed and started working on her breathing. And they worked, and more people were coming into the room. There were nurses of all kinds, doctors and respiratory technicians. They ended up moving her to the Neo-Natal Intensive Care Unit to watch her. At first, they all thought it would be quick and they’d update us in about an hour.
Little did we know….
Jonathon went to try and see her well after an hour had passed. He couldn’t get in at first..they’d told him to come back. He eventually got through a bit later and took a few pics. She was hooked up to enough machines, including a ventilator. It appeared that she’d swallowed some fluid on the way out. There was also meconium during the birth, and they weren’t clear on if or not she’d swallowed that. But she had fluid in her lungs and in her stomach. She also appeared to have some sort of infection and high blood pressure in her lungs.
Jhyelle was a very, very critically sick little baby. The doctor came by later that evening (she was born at 9:33 am) to talk to us. She explained how critical her status was and that they were proactively treating her infection, even though they weren’t sure of the specifics. She also explained that a blood transfusion is sometimes necessary and wanted our permission should they need to do it. The doctor also explained that this problem is common and that there’s nothing we could have done differently. There was also the possibility of long term developmental delays (which we’d find out down the road) and even the risk of death. She was given a 60-70% chance of recovery.
I finally saw her later that evening for the first time. They had her heavily sedated and she was receiving the blood transfusion. The fresh platelettes were helping to improve the oxygen levels in her blood. She was so fragile that they couldn’t even weigh her or measure her, let alone bathe her. We were barely allowed to touch her, only briefly on her legs.
She had intravenous lines in both arms and was on the ventilator. She also had a couple lines through her umbilicus, for nutrition and blood drawing purposes. She was quite warm, and didn’t need to be clothed.
That first night, she’d actually gotten worse. They had even put her on a heavier ventilator that helps to basically “shake” the air into the lungs. It looked more intimidating than it sounded. When we arrived the next morning, the doctor explained that her illness looks to have plateaued, and they were hoping she’d only make improvements from that point on. This tiny little baby was connected to and dependant on so much equipment that she occupied the space of 2 beds in the NICU.
Some other things that happened for her:
–Lumbar puncture on Oct 9, to determine the specific type of infection.
–Came off the ventilator and onto nasal prongs on Oct 11.
–Started on breastmilk, via gavage tube on Oct 11.
–Met Jamayia for the first time on Oct 11.
–We were able to hold her for the first time on Oct 13. We bottlefed her then too.
–Moved to a regular bassinet on Oct 15.
–Breastfed for the first time on Oct 15.
–Mom changed her for the first time on Oct 16.
–Moved to a step down pod in the NICU on Oct 17 (en route to going home).
–Finished intravenous antibiotics for the infection on Oct 17.
–2nd visit with Jamayia on Oct 18.
–Moved again to another step down/going home pod in the NICU on Oct 18.
–Nasal prongs removed on Oct 20.
–Passed car seat respiratory test the first time on Oct 21.
And she was finally released on Wednesday, Oct 22.
Play by play pictures to follow in next post.